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| Sent to me by Rhoda Shore, a long, long, long time family friend. |
Dearest Booble-heads,
Glad to be pecking away at the keyboard again. A lot of time has passed since I last checked in. The most important thing that happened was receiving the good news on my last CT scan. Two tumors showed up as having shrunk quite impressively; one shrunk 50% and the other 75%. The following week I started the second three month cycle of
Paclitaxel, after which I will do another scan to see if I'm still progressing.
I've had so many themes running through my head the past several weeks and I unfortunately have let them flee from my sieve-like brain. Sure as you get older you forget things now and then. But chemo makes your memory feel like a drawing in the sand. One minute you've got a thought and the next the ocean washes it away and you're like,
Wait! Don't go! Why did I just pick up the phone? Who was I going to call? It's quite frustrating so I try to enter as much as possible in my iCal and have reminders popping up constantly. I'm a big fan of
Post-Its, too. Two days ago I somehow managed to wipe out several weeks of dates in my Google calendar. If I blew you off for something, now you know why.
Argh. Anyway, here's a bit of what's been happening, working my way backwards (though I'm not sure why)...
Thursday, August 29th
I continue to get stopped on the street by people commenting on my hair or lack of it. Some just say it's cool, some say they wish they have the courage to "do it". A young woman in
Pinkberry said she'd like to shave her head but would
just die because it would be like like losing a body part. I suggest to these people that they don't wait to get cancer to go bald as if it makes it more acceptable. Granted, I never would've considered shaving my head before losing it to chemo but if I was really that concerned with how people thought I look, I'd be sweatin' my
kishkes off in that ugly $3000 wig that I almost got stuck with. For those who don't know, I
did win the dispute and got credited back the full amount from Joseph Paris. It took several very long, upsetting phone conversations with the credit card company but it was worth it.
Tonight on the way home from dinner, Sandy, my brother, sister-in-law and I were stopped at the corner of CPW and 7th Ave. A homelessy- crackheady type of guy felt compelled to yell at me,
Stop the chemo, girl! We want you around! I tried convincing him that my being bald was a fashion statement. He wasn't buying it.
I know that's chemo! You should stop it... Damn, you look good, girl. You sexier than all them bitXhes who don't even have cancer. Ok, none of this made sense, but it was funny. Sort of. Dark. The next day Sandy said,
Hey, that guy liked you.. you could've had sex last night!
Uh huh.
Wednesday, August 28th
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| Beautiful scarf compliments of Mom. |
Monday, August 26th
This is what's left of my eyebrows and lashes. Somehow I can deal with the hair loss but the brows and lashes coming out make me look rather cancery. I've acquired a small collection of
Trish McEvoy eye brow shapers so that I'm never without one (for you makeup junkies, Trish McEvoy
Arabian Nights gel liner is also the bomb). I obsessively fill them in throughout the day so I don't repeat glancing at a mirror in a restaurant only to realize that I've been walking around with half of a brow smudged off. Yes, it's happened.
After work I go home and eat the awesome leftovers from Sunday's dinner that Sandy made for me and I
finally, after several weeks, get inspired to write again.
Saturday, August 24th
Modern Love
Attended one of the best weddings ever! Kelcey Edwards (of
"Wonder Women! The Untold Story of American Superheroines" fame) and Ben Segal wed in Catskill, NY on the beautiful
Kaaterskill Farm. It was a super magical night and I couldn't be happier for them both. Unfortunately for Kelcey, none of her co-producers from her
Wonder Women film could make it so I made sure at least one other Wonder Woman was representing (though there were plenty more)!
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Flashing my Wonder Woman underthings purchased for me by Doctor Dana,
who btw, officiated the wedding (yet, another Wonder Woman).
How smokin' hot is this bride?
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| Under the chupa. That beautiful black Russian terrier is Boba the ring bearer. |
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Standing by my man who did anything to make me happy and comfortable
all weekend including buying me that special something covering my head. :)
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Wednesday, August 21st
The Bald and the Bountiful
On my way home from work the next day I am somehow lifted knowing I have the next few days off just to relax and take care of myself. I pick up some groceries and make a point to find the artist whose work I saw yesterday but couldn't remember his name to check him out on line. Lo and behold, the man is there with all of his work packed up; he's waiting for the next bus. I walk up to him and ask, Are you the man who was selling his artwork here yesterday? I loved your poetry. He asks me which one poem and proceeds to pull posters out from a large canvas bag. Was it this one? Or this one? I said, No, it was about pain and art and landing on your feet. He pulled out the one I love. I told him how moved I was and the timing of seeing his work was serendipity. He said thanks, handed me all three posters (that he typically sells for $25 on line) and then said he had to catch the bus that pulled up. With my groceries in one hand and my three posters in the other, his words rang even more true to me. I had no reason to complain with two loaves of bread under my arms. I walked home fighting tears of joy. Funny, because if you read his bio, you'll learn that is his mission: to bring joy to the world. Please, please, please check out this man's artwork and poetry and perhaps buy something or donate to his cause: His main purpose and inspiration for his art is to build free Art Institutions around the world for the young of all ages to come and receive free art supplies; from guitars, pianos, and horns to paint brushes and theaters. Sir Shadow believes that art is the center of inner peace and the motivation towards a better world for each boy and girl.
Tuesday, August 20th
Me and My Shadow
The tears don't stop. Even at work. I am unraveling and decide I need a few days off so I put in for a long weekend and even cancel my chemo appointment for Thursday. With these crazy mood swings come some itchy, puffy eye allergy and I look like Jake Lamotta after a few rounds in the ring. I'm concerned that with this and minimal eye brows I'm going to feel horrible and look even worse for the wedding coming up on Saturday. I go to Sephora and spend $20 on Anastasia eye brow stencils which I try at home. This results in looking like the love child of Jake Lamotta and Joan Crawford. It ain't pretty.
On my usual route home from work I stop at the light on W72nd and B'way and am riveted by this man selling his artwork. On black heavy stock paper are simple yet poignant drawings in metallic ink. Beside them are small posters with this man's poetry. After days of crying I am so taken aback by his words as if they were placed there just for me to see. I rush home trying to remember his name...Shadow something, Shadow, Shadow something...
Monday, August 19th
Text to my mom: I'm eating veggies on a bench in front of Organic Avenue and texting u. A bald man w a beard stopped short in front of me. I thought he'd beg for food. I glanced up and he said, I love your haircut and walked away.
I am still on an emotional roller coaster and the $12 steamed veggies and quinoa didn't make me feel any better. Yes, I actually thought it might cleanse me or something miraculous.
Sunday, August 18th
Off to the cemetery for an annual visit to my grandparents followed by lunch at my Mom's. I'm feeling better being with Sandy and surrounded by my family but admittedly I am hung over from the pain killer. How do people get addicted to that stuff? Seeing my niece and nephew makes me so happy.
Saturday, August 17th
Sandy and I go shopping in the late afternoon. For some reason I get overwhelmed with nausea and horrible back pack pain. We cut our excursion short and he puts me to bed with an anti-nausea meds and an Ativan. I sleep for hours.
Friday, August 16th
I'm still crying uncontrollably and I cannot get a grip on why. Sandy took me for oysters at night because he knows I love them. I ate six. I think five worked. Ba da boom! Drum and cymbal crash... My dad always uses that joke when ordering oysters.
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I came home from work and found this card slipped under my door.
It was sent to me anonymously! Thoughtful? Creepy? I don't know, it made me smile.
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Thursday, August 15th
Email to Mom from the chemo chair: One of my fave nurses from the practice just came in and boosted my spirits. She doesn't know my name, rather, she calls me Inspiration whenever we see one another. Today she commented she liked my brows, which oddly enough are falling out, so I have to artistically fill them in. I shared my new secret weapon, the Trish McEvoy precision Brow Shaper in Natural Brunette. She made a mental note. This nurse is so lovely, gorgeous and compassionate. A little peek in the room for a brief exchange of words brings a big smile to my face. Next thing you know the machines'll be beeping and it's time to go.
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I'd been crying for two days. Not sure why but perhaps the combination of losing my
tooth and what's to follow, started to lose my brows, the nurse suggested I get a
port for chemo (vs. the IV because my veins are getting hard to work with), if my
hormone's are raging or what. I'm just not happy. |
Saturday, August 10th
A Horse is a Horse, Of Course of Course...
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| Henry and me hanging with Bliss. |
Sandy introduced me to his good friends Lory and Bob in Ringoes, NJ two years ago. I took an instant liking to them as well as visiting their menagerie on Dragonfly Farm which consists of three horses, a rabbit, three dogs, two cats, two Pigmy goats, two Sicilian miniature donkeys and I don't know how many chickens. Going to their house is a great escape from NYC and there's always some great element of surprise. Much to my surprise, during our last visit I took Lory up on her offer to get on one of her horses. The last time I attempted this, I was 15 and I lasted all of two minutes. This time was much different. Lory let me get familiar with Bliss by brushing his coat and tail, which by the way is amazing--the hair is so incredibly thick and strong, sort of like the indestructible black hair on my
Cher doll circa 1975. Lory then showed me how to put on the saddle, I squeezed my big head into her tiny helmet, and with very little grace in my yoga clothes and sneakers a size too small for me, I mounted the horse. Despite his calm demeanor, I was petrified of being up so high on a 1200 pound animal yet it was quite exhilarating. With the slightest movement I was terrified and Lory had to remind me that Bliss is a living, breathing animal, and yes, it would move. I never let her let go of the reins, but still, we circled the ring several times and I could say I rode a horse. What a thrill. I mean it. This is a beautiful creature and I have a newfound respect for any one who does this with some sort of regularity. Your core muscles, back and legs cannot be the least bit weak if you don't want to strain yourself and this is being said after doing nothing more than taking a stroll. After my first official ride on a horse, we took a dip in the pool and ran errands at the local tractor and farm supply store where I found myself roaming the aisles looking for the latest trends in farm fashion. Whaddya think?
Tuesday, August 6th
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An amazing first.... Sandy and I were invited for dinner at the Friar's Club.
No celebrity sitings but who knows who might've sat in the chair I was dining in. Trust me, I'd flip out if Fallon or Kimmel walked in, but what I really wanted was for the pictures on the walls to come alive. Dino, Sinatra, Marilyn...I'd buy them all a drink, or ten.
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Sunday, August 4th
Flying the Super Friendly Skies
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| This was taken on our Jet Blue return flight from PBI to LGA. Well, we weren't in flight just yet. Just before takeoff the skies opened up and turned black and we were stuck on the runway for a while. The pilot very casually took the mic and suggested we kick back and relax and invited the kids to come up and check out the cockpit. Why he singled out the kids, I'm not sure. But Sandy and I were sitting in the second row and I saw no reason why I should be excluded from the fun. So like a giddy seven year old I climbed into the Captain's seat and asked our co-captain, What's this? What's that? How do you fly this things?! She responded, Oh, it's not that hard, it's just a bunch of computer stuff. A bunch of computer stuff to me means managing this blog and checking email. Wow!! Yet another thrill just sitting in that seat, looking out the front window onto the runway imagining being responsible for taking 200 people up for a ride above the clouds. The only downside was not getting the little wings we did as a kid. That was back in the day when flying really felt like a privilege and although the food sucked, you looked forward to the ritual of having it served to you by hospitable, happy people who liked their job. |
Thursday, August 1st
We Are From France... (Cone Heads)
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Not too swollen considering my mouth is filled with gauze.
I still get very uncomfortable just thinking about this procedure. |
Tuesday, July 30th
Lost and Found
One #14 tooth. Had to have what's left of my back tooth (former root canal and crown) pulled. Why? Because when the dentist recommended that I replace the crown, I didn't want to deal with the procedure or the expense. The crown broke as he predicted, the tooth fractured and couldn't be saved, the expense tripled and I had to live through this crappy experience. Not only did I loose my tooth in the chair, I. Lost. My. Frigging. Mind.
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What broke off my tooth. Fortunately for you, I didn't photograph the remains that were yanked out.
Anyone care to Netflix Marathon Man?
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Total props to the surgeon,
Benjamin Jacobs, DMD who is also a huge Seinfeld fan. How do I know? When the tray of tools were rolled out, I literally thought I'd pass out. I said to him,
That's quite a tray of large tools you got there, to which he replied,
Plumbers have tools, surgeons have instruments. I said,
Oh, like the tiny instruments used on the squirrel on Seinfeld? CLICK HERE FOR TINY INSTRUMENTS He knew the reference and then we bonded (no pun intended). We chatted about Sein, Howard Stern, the Upper West Side and I was suddenly calm as if I were just hanging out with my friend in Monk's coffee shop. That is, until the procedure began and I got hysterical despite the gas. I have to say, Doc Jacobs was so patient, professional and has an amazing bedside manner. Lucky for me I get to visit him several times more for an
IMPLANT.
People, do WHATEVER you can to not lose your teeth!! You will thank me one day!! I think I can park a SmartCar in the gap I have now.
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This was taken the last weekend of our summer house in Springs. I don't know for how many years I've been saying I must get to Jackson Pollock's studio and this summer there was no excuse since we were less than a mile away. Before you walk in you must exchange your shoes for a light pair of slippers since the floor is covered in the paint splattered about by JP himself while working on his large canvases. The studio is fairly small and there actually aren't any of his or Krasner's paintings on display but I swear you get transported back in time and his presence (and angst) can be felt. Being here made me feel very alive.
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I didn't take any pics of the interior of the house because it needs to be seen in its entirety. It's quite charming and hard to imagine such turmoil existed within the walls of this cozy home. Krasner continued to live there after the death of Pollock until her demise. You can purchase her spider plants' flowers which have been growing since at least the 80s, which we did for Sandy's mom.
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Thursday, July 25th
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I'm fairly certain this is the day my onc gave me the sex talk during my weekly follow up. Well, it didn't start out that way. We discussed how the chemo throws your body into menopause or what appears to be menopause--the undesirable symptoms are the same. We covered fun things like libido, hot flashes, and y'know, some other stuff. He gave me an unsolicited (though well intentioned) education on the benefits of Astro Glide as if I were not 46 and ever been to a drug store. I started snickering inside like an immature pre-teen having "the talk" with her mom about periods, tampons and boys and acted particularly infantile when he got to the part about being comfortable in any position. Immediately after this two minute-which felt like an hour long-conversation ended, I jumped off the table and said, Well, Doc, that was a nice sex talk, patted him on the arm, spun around on my heels and headed for the chemo chair.
Saturday, August 31, 2013
Ding Dong. The unofficial end of summer.
Finally, what you see here looks like your ordinaryVietnamese Dong. It was given to me by my friend Melissa while catching up over sushi after not having seen or spoken to one another in over a year. I thought this was her idea of a joke, trying to tip the waitress with Dong worth less than a dime. She explained she'd gotten two of these "blessings' at Buddhist temple during her travels, she'd kept one for herself and has been carrying around the other not knowing with whom she would share it until we were having dinner. I was so touched by this gesture and now carry it in my wallet; every time I take out my cash, this comes out with it and I reminded of Melissa's love and friendship. Talk about paying it forward.
I'd like to share this blessing with you. Your love and support is what keeps me remaining positive. Sure, I'll have my setbacks now and then, but if things were really that bad, I don't think I'd be typing my thoughts on a Mac computer in the comforts of my beautiful home with my beautiful man beside me on a beautiful summer's day. Let's all take the time to give thanks for what we have and continue to look forward, not back.
Happy Labor Day. Happy Jewish New Year. Happy to be alive.
Life is good.
Love,
Me.
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